Connect as a family
Start with the Foundation’s registration service and learn how to request access to family support channels.
Family registrationEVERY FAMILY BELONGS
Get involved
Choose a practical way to contribute: connection, awareness, time or research support.
Share useful information
Introduce the diagnosis to schools, care teams and people who support your family. Start with accurate information and the individual’s own needs.
Understand JdVSVolunteer or organize an event
Ask the Foundation about current volunteering needs or how to coordinate an awareness or fundraising event.
Email the FoundationSupport research and community
Review the separate donation destinations and choose the organization or project you want to support.
Ways to supportCommunity should include the whole spectrum
Make room for families with intensive care and continuous supervision needs, as well as those with lower support needs. Connection should respect the individual’s dignity, the caregiver’s time and the sibling’s experience.
Explore family storiesEmail buttons open your email application. Nothing is sent until you send the message yourself.